Articles Posted in Special Needs Planning

March-300x212

While there are endless concerns for parents of children with special needs, one of the greatest worries is who will care for them in the future.

With proposed Connecticut State budget cuts to the Department of Developmental Services (DDS) totaling millions of dollars, parents need to plan now to ensure quality care throughout the child’s lifetime.

“Generally, the parent of a child with special needs has two goals: to provide or source enough financial security to  maintain the child’s quality of life now and after the parent is no longer here, Continue reading

AdobeStock_86244892-300x237

Helping Families See Eye to Eye

What happens when family members find themselves at an impasse over a decision about how to care for an aging parent or a loved one with disabilities? Or manage that person’s financial assets?

How can you move forward when it seems as if you’ve exhausted all avenues of communication, but everyone is still divided?

Complex and emotionally charged family relationships can become strained during times of stress or crisis, making even the simplest conversations impossible. Our experience helping hundreds of families navigating complicated decisions has shown us time and again that most families can benefit from having an impartial third party facilitate family conversations.

For this reason, we are pleased to announce the addition of Amy Sereday, a Family Meeting Facilitator, to the CzepigaDalyPope staff. Amy, who will Continue reading

mosaic-300x240By  Kathleen D. Tetreault

Shelter is one of life’s basic necessities.  Yet simply because something is necessary, does not mean that it is easy to acquire.

Perhaps this sobering truth is best known by aging parents of individuals with intellectual and developmental disabilities (I/DD), who wonder where their adult child will live, and how he or she will be cared for, when they are no longer around.

Housing for individuals with I/DD is a complex mosaic with pieces uniquely shaped to each person’s particular needs and circumstances.  In crafting this mosaic, there are three key questions that will help to guide you along the way: Continue reading

Heart in woman hands. Love giving, care, health, protection concept

By Kathleen D. Tetreault

Family members of individuals with intellectual disabilities go to extraordinary lengths to provide their loved ones with proper supports, services, and care.  Establishing guardianship is often a necessary part of protecting the health and safety of individuals with intellectual disabilities.  Yet, while many people are generally familiar with the concept of guardianship, few know what guardianship of an individual with an intellectual disability actually entails. Continue reading

stop waiting time for action act now dont waste time standing in a row for a wait list being impatient

By Kathleen Tetreault

The bleak state of our State is that many individuals with special needs are no strangers to “waiting lists” for vital supports and services in the community. For many, the term waiting list has become synonymous with “good luck and goodbye.”

But for those individuals who have fallen into the dark abyss of waiting, the Department of Justice has released a groundbreaking statement that shines a ray of hope.

The United States Department of Justice issued a powerful Statement of Interest in an Ohio case wherein individuals with disabilities sued the State for placing them on long waiting lists and for failing to provide supports in the community. Continue reading

kt cropBy Kathleen Tetrault

On July 13th, Congress took another critical step toward furthering the rights of individuals with disabilities. 

Members of a committee within the House of Representatives voted to pass the Special Needs Trust Fairness Act—a bill that would allow individuals with disabilities to establish their own special needs trusts (known as first-party special needs trusts).

summer fun

If you use a wheelchair, there’s a lot to do in Connecticut, especially during our way-too-short summer. Whether you love the beach or the woods, there are many great venues to sample.

We did some research and selected some special places for you to check out.

Take a Hike

Rails-to-Trails Conservancy lists wheelchair-accessible trails in Connecticut. Here are user-reviewed five star-rated trails:

Continue reading

Amanda Lustig Guest blog, by Amanda Lustig

When I was not quite 40 I was diagnosed with multiple sclerosis and my life was permanently altered. It has taken 15 years of battling – a divorce, unemployment, bankruptcy and foreclosure, not to mention dealing with the advancing disease itself – but today I feel like I have taken back control of my life.

When a disease like MS strikes, particularly for those who experience advanced, crippling symptoms and who – like me – require daily living assistance, life can become a stress-inducing chore.

Tax Free SavingsBy Kathleen Tetreault

On June 1, 2016, Ohio became the first state in the nation to open its ABLE account program.

This news is making national headlines because individuals from any state—including Connecticut—can go on-line and create an Ohio ABLE account that will be valid in the individual’s home state.

What are ABLE accounts?

For those who are new to the game, ABLE accounts are tax-free savings accounts for individuals with qualifying disabilities that began before age 26. Continue reading

Baby girl building from toy blocksBy Claudia W. Englisby

When a marriage breaks up and there are children involved, the ideal situation is when both parents cooperate for the benefit of their children.

This is especially true for parents of a special needs child.

The very best time to start planning for a child with special needs
is at the beginning of the divorce process.

Two Heads Are Better Than One

In best-case scenarios, the divorce attorney collaborates with an experienced special needs planning attorney to map out a plan that will provide maximum resources for the child. Otherwise, parents could unintentionally cause their child to forfeit valuable benefits they are entitled to. Continue reading

Members of: